I got to help with her bath today and hold her for a few minutes while they changed her bedding. She is so tiny!
Evelyn is doing really well today. They now think a lot of her breathing episodes are related to when she is eating. Her brain is still too immature to remember to breathe while eating. Too much for such a little girl. There could also be a reflux issue while she is eating that is causing some of her apnea episodes. So instead of letting the milk flow by gravity from the syringe into her tummy, they put the syringe on a pump that delivers her milk - all 19 cc's of it - over an hour and a half. That way it flows into her tummy at a much slower rate and (hopefully) allows her to adjust to having to digest and breathe, all at the same time.